Wednesday, April 28, 2010

What are we doing here...







I worked as a Hospice social worker for 12 years. I went to people's homes and witnessed their final breaths, heard final wishes, heard unresolved heart aches that sometimes went with them if not released before leaving. When I first started working in this field, I thought somehow I might know something about life and be able to counsel people. I wanted to be this neat little package of goodies that entered their lives. I found out real quick that counselling a traveler who was ending every reality known to them and me goes beyond the comfort zone of treating grief pathology with the intellectual, professional detachment usually used with a "patient".



Welcome aboard to the world of countertransference. A psychological term, defined in a book called "When Professionals Weep", published by Taylor and Francis Group as "... a concept that actually beckons the helper to look at their humanness in the face of dying, death, and bereavement, rather than avoiding it". This description fits the context of End-of-Life Care and a professional's powerful reaction to their work. Unlike the days of Freud where this reaction was considered an obstacle, it is now considered a natural, appropriate and healthy therapeutic tool and is the basis for empathy and a deeper understanding of ourselves and the patient.

As a social worker in Hospice, I was graced with being invited into homes to witness, share, listen and assist. Nurses have a easier way in as they are tending to symptom management and pain control and are necessary. People would have to like me to let me in because it was their home, their domain and if you were anything other than a "comfort" or of some use, you were kicked out. So I offered myself, my willingness to interact and my emotional response became a tool to understand and explore their world while being mindful and aware of my responses that could potentially interfere with their dying process. I learned to believe in the person and their ability to find purpose, to continue living even though they were being forced out of their physical body because of an illness. Right here you can see that I believe in the soul, our inner self and that our bodies are containers of that spiritual self. That belief is mine and I am aware of it; it is not something I ever tried to foist on a patient but I would explore their beliefs if allowed. I learned to focus, to listen and not turn away, not distract, not avoid, not deny, and not abandon the person when I became uncomfortable by what I saw and heard. I believed that each person had a right to do their dying business according to their individualistic style and yes I did hope the person could be graced with dignity, integrity, hope and even possibly with peace. I say possibly because I have witnessed the opposite, the inconsolable, broken hearted, angry, despairing death also. These are the ones that test your boundaries the most. Sometimes life beliefs, attitudes and emotional states culminate when you are close to death and there is not time to resolve all of that which may have been dormant somewhere in that person's psyche and surfaces at this vulnerability time. This is where I felt my work was at. This is where I would ask the dying what they needed to do or have done before they died (in case they needed permission to ask). Sometimes it was as simple/difficult as locating a son or daughter who for their own reasons had nothing to do with the patient. When I made the call, sometimes it meant reunion, forgiveness, completion and sometimes I got to hear the harshness of words like, "I hate that fucker, he raped me when I was young". Right there, I had to check any countertransference I had going on about molestation and move on to help the patient to identify and perhaps seek self-forgiveness with help from myself and our Spiritual team.



So many times I watched the nurse, bath aide, or volunteer try to fix the dying, try to do home remedy psychology on the person. I had a big problem with a particularly loud, insecure,"Praise the Lord" nurse I worked with who was convinced her religious beliefs were the way for people to find peace and resolution before they died. My theory was she kept up all that noisy religious stuff so she could not hear or feel her own loneliness, fear, and avoid recognition of how harmful she could be to a vulnerable person who was too weak to fend her off. Countertransference gone berserk. That is where I would enter the picture by advocating for folks and reminding staff of boundaries, inappropriate behavior on their parts, etc. I was not the most popular with the "less mindful" workers who ultimately made themselves feel better by playing hero. This nurse was a conscientious experienced nurse albeit manic and to me she had her place with the less cognitively inclined population who didn't give a damn what she believed or who she praised. I remember we kept her working in the nursing homes because she was given the boot quite frequently from the homes. So, the Hospice workers are not perfect and choose the work for many many different reasons and no matter who or what they are, they enter an arena, the dying arena that most people avoid. We had to face our mortality on a daily basis not when we had a moment to ponder the meaning of living and dying and so we had to have our countertransference issues in check at all times.

I will be sharing vignettes of what I witnessed and experienced and learned in this profession in this blog.

2010 Rozanna Landavazo

10 comments:

  1. Where's this been hiding? I assume you started it awhile back and just now finished. I think blogger should wait til we post to date it rather than when we start it. what is the purpose or meaning of a draft then. i find this writing valuable and though provoking. thanks. i also like your new profile photo.

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  2. I agree with post dating. Sort of confusing. Thank you for comments on post and new photo! and I have more coming.

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  3. I found this to be extremely insightful. I have learned much from this short post. Poetry aside (which is astounding), you are a very good writer. Thank you for sharing this and I look forward to more on this topic. Pretty sure I could not work for hospice. Too sad. I admire those who do, like you, because I know how needed and appreciated you are at that time in life.

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  4. Have to concur with Rachelle on this. When my Dad was dying, although my step-mother a retired nurse, looked after him with extraordinary love and devotion, if it were not for hospice Dad would not have died looking out his picture window at the great lake he fished so many times, Mille Lacs. When Dad died, she cried and hugged with my brother John and my step-mother, although I can't remember her name, at that time she was family.

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  5. And what you describe Michael was the beauty of the work I was privledged to do. I am so glad the Sargent had such beauty and love surrounding him. A salute to Virgil...

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  6. I'm a cousin of Michael, and he steered me to your site. I found it interesting and insightful, thanks for sharing. What part of the U.S. do you call home?

    I've been interested in the topic of our journey in this part of life and beyond for quite some time, and believe that the ones gone before us can and do, communicate with us in many ways, if we are but aware, and take some quiet time to listen for them.

    Just finished reading "Beyond Knowing" by Dr. Janis Amatuzio, MD, a forensic pathologist from here in MN, and found her description of our journey as just another step, just another chapter in the book we call,"Life", as in tune with my personal beliefs. Fascinating.

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  7. Thank you for your comments Frank. I live in the state of Washington, born in Gallup, New Mexico and got raised in the military and spent a good deal of time in Alaska growing up. I will have to check out the book...sounds very interesting. I will be writing more stories about the "communications" shared with me by the dying and then later by their families after the loved one died.

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  8. Today my friend told me about her sister-in-law, a young mom that died of breast cancer a couple of weeks ago. She left a husband and four children. Her two year old daughter has been heard conversing with her mom in her bedroom. She says mom comes to talk and tuck her in. She has not seen her, but knows that she is there. A great story, and it is helping them to find some peace in a very stressful situation.

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  9. You have inspired me to write a story about 2 little girls I worked with who lost their mothers. Who knows with our wee ones; they don't have the barriers/layers we seem to gain over time. When my grandson was 4, he swore his young Uncle who had died was in his bedroom and it spooked him. I told him he was in charge of who came and went from his room and told him he could ask his Uncle to leave so he did and it worked for him but he also added it was ok for Uncle to come back.....who knows Frank. I am humbled that your family finds some peace reading this story.

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  10. I feel honored to read your thoughts and share your experiences. The book is coming out when?

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